Thursday, July 26, 2007
This is our friend Ben. Ben is a really cool little guy who was born at the same hospital as Holland and Eden, and spent time in the NICU. I met his parents through the NICU Family Advisory Board, and have really enjoyed getting to know their family.
Unfortunately, Ben has recently been diagnosed with severe reflux. He is scheduled to go in for the fundoplication surgery next Wednesday and his mom, my friend Shannon, is understandably struggling with the impossible decision to go ahead with it.
Ben is four, and has been hospitalized several times with pneumonia. Just this past spring that they found out that the pneumonia was being caused by aspiration of stomach contents. Other than that, Ben does not show any outward symptoms of reflux. He eats pretty well and is growing, and doesn't complain at all of pain. He also has not been hospitalized with pneumonia since last fall (will be a year in November). However, Ben's pulmonologist highly recommends the surgery because the results of Ben's pH probe were "the worst" he has "ever seen." It seems like Shannon might be in the sticky place where the risks of doing the surgery are less than NOT doing it.
Soooo...I know a lot of my blog readers have experience with the fundo surgery itself, and with the outcome. Will some of you please share your story to help my friend? How did the surgery go? Did it work to fix the problem? Did you find the side effects manageable? Overall, did you feel like it was a good decision and one you would make again? I know Ben's mom Shannon would really appreciate some input from those of you who have been there.
Posted by Billie at 11:18 PM