Sunday, April 27, 2008

Thank You!

16 comments:

TBG said...

Congrats.

Eden's smile is contagious. Oh the happiness that little girl emits is priceless.

Way to go Team Holland and Eden.

Anonymous said...

These pictures REALY need to be on flicker or somewhere we can "steal" them. OR you could e-mail them all to me:)

Kim

Mel said...

Loved the music, loved the pictures! Crying happy tears:)

Anonymous said...

I cried and cried through your video! I wondered if I was the only one that feels like this song is for her kids, but I guess not!

Congrats on raising so much for MOD!!! Looks like you had a beautiful day and a great group :)

Belle said...

This song was perfect for the video! I love the pic's and looks like you had a lot of people walking on your team. Way to go raising so much money!

Sherry :)

Kendra Lynn said...

Congratulations! The girls are more beautiful every time I see them.

Kendra

Justinich Family said...

Love the video and the song, I never thought of that song before but it fits so well. I love the pics of Eden sliding. They are doing so awesome.

Stacy from CP moms

irene said...

Congratulations..your family is beautiful

twinmama said...

We're huge Johnny Cash fans here and think you picked the PERFECT tune for this! Congrats on raising so much money-looks like you had an amazing time.

You're inspiring me to try harder next year to get people to walk with us. It's great to raise the $ but just as important to share the experience of walking with people who love and support you and your family.

Nice work.

Anonymous said...

Awww, that's just wonderful!


My favorite pics were the one of John hugging Eden that was a close up of their faces, and the one of you going down the slide with both girls.

Anonymous said...

I see Malachi's "muscles" made the video cut! Love you guys, and had a great time walking with you guys!
Nick

Anonymous said...

Congrats.

By the way, did Eden get a new BTE or has it always been pink?

Tricia

Anonymous said...

To You, My Sisters
By Maureen K. Higgins

Many of you I have never even met face to face, but I've searched you out every day. I've looked for you on the internet, on playgrounds and in grocery stores.

I've become an expert at identifying you. You are well worn. You are stronger than you ever wanted to be. Your words ring with experience, experience you culled with your very heart and soul. You are compassionate beyond the expectations of this world. You are my "sisters."

Yes, you and I, my friend, are sisters in a sorority. A very elite sorority. We are special. Just like any other sorority, we were chosen to be members. Some of us were invited to join immediately, some not for months or even years. Some of us even tried to refuse membership, but to no avail.

We were initiated in neurologist' s offices and NICU units, in obstetrician' s offices, in emergency rooms, and during ultrasounds. We were initiated with somber telephone calls, consultations, evaluations, blood tests, x-rays, MRI films, and heart surgeries.

All of us have one thing in common. One day things were fine. We were pregnant, or we had just given birth, or we were nursing our newborn, or we were playing with our toddler. Yes, one minute everything was fine. Then, whether it happened in an instant, as it often does, or over the course of a few weeks or months, our entire lives changed. Something wasn't quite right. Then we found ourselves mothers of children with special needs.

We are united, we sisters, regardless of the diversity of our children's special needs. Some of our children undergo chemotherapy. Some need respirators and ventilators. Some are unable to talk, some are unable to walk. Some eat through feeding tubes. Some live in a different world. We do not discriminate against those mothers whose children's needs are not as "special" as our child's. We have mutual respect and empathy for all the women who walk in our shoes.

We are knowledgeable. We have educated ourselves with whatever materials we could find. We know "the" specialists in the field. We know "the" neurologists, "the" hospitals, "the" wonder drugs, "the" treatments. We know "the" tests that need to be done, we know "the" degenerative and progressive diseases and we hold our breath while our children are tested for them. Without formal education, we could become board certified in neurology, endocrinology, and physiatry.

We have taken on our insurance companies and school boards to get what our children need to survive, and to flourish. We have prevailed upon the State to include augmentative communication devices in special education classes and mainstream schools for our children with cerebral palsy. We have labored to prove to insurance companies the medical necessity of gait trainers and other adaptive equipment for our children with spinal cord defects. We have sued municipalities to have our children properly classified so they could receive education and evaluation commensurate with their diagnosis.

We have learned to deal with the rest of the world, even if that means walking away from it. We have tolerated scorn in supermarkets during "tantrums" and gritted our teeth while discipline was advocated by the person behind us in line. We have tolerated inane suggestions and home remedies from well-meaning strangers. We have tolerated mothers of children without special needs complaining about chicken pox and ear infections. We have learned that many of our closest friends can't understand what it's like to be in our sorority, and don't even want to try.

We have our own personal copies of Emily Perl Kingsley's "A Trip To Holland" and Erma Bombeck's "The Special Mother." We keep them by our bedside and read and reread them during our toughest hours.

We have coped with holidays. We have found ways to get our physically handicapped children to the neighbors' front doors on Halloween, and we have found ways to help our deaf children form the words, "trick or treat." We have accepted that our children with sensory dysfunction will never wear velvet or lace on Christmas. We have painted a canvas of lights and a blazing yule log with our words for our blind children. We have pureed turkey on Thanksgiving. We have bought white chocolate bunnies for Easter. And all the while, we have tried to create a festive atmosphere for the rest of our family.

We've gotten up every morning since our journey began wondering how we'd make it through another day, and gone to bed every evening not sure how we did it.

We've mourned the fact that we never got to relax and sip red wine in Italy . We've mourned the fact that our trip to Holland has required much more baggage than we ever imagined when we first visited the travel agent. And we've mourned because we left for the airport without most of the things we needed for the trip.

But we, sisters, we keep the faith always. We never stop believing. Our love for our special children and our belief in all that they will achieve in life knows no bounds. We dream of them scoring touchdowns and extra points and home runs. We visualize them running sprints and marathons. We dream of them planting vegetable seeds, riding horses and chopping down trees. We hear their angelic voices singing Christmas carols. We see their palettes smeared with watercolors, and their fingers flying over ivory keys in a concert hall. We are amazed at the grace of their pirouettes. We never, never stop believing in all they will accomplish as they pass through this world.

But in the meantime, my sisters, the most important thing we do, is hold tight to their little hands as together, we special mothers and our special children, reach for the stars.

Kellars Mommy said...

Love all the pics!! The pic of Eden sliding on the slide is priceless..

BoufMom9 said...

Wow! How wonderful!

Debbie said...

Wonderful video with the perfect song! We walked this year for the first time, and I felt out of place without a big team with matching t-shirts, although most of them were corporate teams. Maybe next year...