tag:blogger.com,1999:blog-7915600.post115647705729059684..comments2023-10-29T08:13:44.434-04:00Comments on Micro Preemie Twins: The Story of H & E: Enough AlreadyBilliehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-7915600.post-1156949878145939042006-08-30T10:57:00.000-04:002006-08-30T10:57:00.000-04:00The physical medicine doctor works kind of as a ca...The physical medicine doctor works kind of as a case manager for people with CP (and other physical disabilities). They will monitor bone growth and muscles, and will do botox or some other procedures as necessary.<BR/><BR/>We have an appt with an Orthopedic Surgeon at the end of Sept. The physical medicine doctor referred us. I guess they will look at Holland's chest, and Eden's spine and ribs, to make sure that they don't need surgery, or have problems with their bones that will interfere with growth.<BR/><BR/>There are so many different docs who do diff things that I have a hard time keeping them straight!!!Billiehttps://www.blogger.com/profile/10589229199716201638noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-1156911816383551602006-08-30T00:23:00.000-04:002006-08-30T00:23:00.000-04:00Holy cow woman! You have been through a rough pat...Holy cow woman! You have been through a rough patch, sweetie. I am so sorry to hear about the breath holding episode, that must have been so scary! You are so strong to handle it all, and meltdowns are part of the territory. (dont know where Id be without them...)<BR/>By the way, what is the difference between a physical medicine doctor and the pediatrician?<BR/>Your girls are so beautiful! I so enjoy watching them grow :) Love the pic of Holland "reading" the potty training booklet.Anonymoushttps://www.blogger.com/profile/16466272950880850478noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-1156866290266076392006-08-29T11:44:00.000-04:002006-08-29T11:44:00.000-04:00Congratulations on the 2nd year birthday. Your da...Congratulations on the 2nd year birthday. Your daughters are amazing and so are you! God bless you all! LisaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-1156790428933769212006-08-28T14:40:00.000-04:002006-08-28T14:40:00.000-04:00How scary it must have been to go through that wit...How scary it must have been to go through that with Eden! I can imagine I'd have a breakdown after all that as well. What a tough few weeks it's been for you guys. The girls look so stinkin cute & so sweet! At least Holland can benefit from having some good therapies now that she has an official dianosis of CP. I don't know, was she already receiving services from E.I.? Glad to hear that the Dr. thinks the girls are doing so well. I like you, always go in with all these worries & concerns usually only to have the Dr. say they're doing fine. You're doing such a great job Billie!Michellehttps://www.blogger.com/profile/11553537964217603347noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-1156687095978500022006-08-27T09:58:00.000-04:002006-08-27T09:58:00.000-04:00Dear Billie:I'm so sorry you had such a traumatic ...Dear Billie:<BR/>I'm so sorry you had such a traumatic time with Eden getting her blood drawn.<BR/>I can't even take Merry when she has to have shots or get her blood drawn. My mom and Scott have to take her. I"m really bad with needles, and get faint...but the worst part is, when she starts screaming and they have to hold her down, it totally breaks my heart!<BR/>I've had near breakdowns as well, over stuff like that.<BR/>I love you, and I hope that Eden starts feeling better soon, and that the stress goes away soon.<BR/><BR/>KendraKendra Lynnhttps://www.blogger.com/profile/10987312000889846337noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-1156626533125179252006-08-26T17:08:00.000-04:002006-08-26T17:08:00.000-04:00Hello! I am also a mom in the Detroit area with 2...Hello! I am also a mom in the Detroit area with 24 weeker twins born August 2004. Both of my kids also have CP. Just wanted to drop a note to say hello and my thoughts are with you. I really enjoyed coming across your site! Karen kdip@sbcglobal.netAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-1156606015493132952006-08-26T11:26:00.000-04:002006-08-26T11:26:00.000-04:00Wow, what an exhausting and stressful day. I hope ...Wow, what an exhausting and stressful day. I hope Eden is feeling much better soon, and regains her appetite. Especially I hope the Zantac helps her. Our son is on two reflux meds, and they make a big difference to him. His respirologist also ascribes most of his asthma symptoms to the reflux and aspiration. I hope controlling the acid helps E a lot.<BR/><BR/>Your girls are so sweet, and have made terrific progress, no matter what diagnostic labels they are given. They bloom just like the water lilies in your blog photo.<BR/><BR/>Best wishes,<BR/>SheilaCAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-1156555000541280552006-08-25T21:16:00.000-04:002006-08-25T21:16:00.000-04:00You and your girls are truly remarkable! We are ho...You and your girls are truly remarkable! We are hoping that Eden will be back to herself in no time. You needed that breakdown, thank goodness your mom was with you. I always appreciate your candidness, and as always, the girls are gorgeous!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-1156547668501885672006-08-25T19:14:00.000-04:002006-08-25T19:14:00.000-04:00You are doing such a fantasic job with the girls! ...You are doing such a fantasic job with the girls! Don't forget that! I hope that whatever Eden has, they can give her SOMETHING to give her a little relief.<BR/><BR/>The photo of Holland reading the "Potty Training Tips" booklet with such an intent look on her face is priceless.MamaChristyhttps://www.blogger.com/profile/17631440397774437809noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-1156547098407281182006-08-25T19:04:00.000-04:002006-08-25T19:04:00.000-04:00Hang in there sweetie. You're such a good mom.......Hang in there sweetie. You're such a good mom....my hero in the mom arena!!<BR/>The girls are beautiful as always, thanks for updating us with your great posts. <BR/>Hey to John!!<BR/><BR/>Love, JulesAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-1156543422228305852006-08-25T18:03:00.000-04:002006-08-25T18:03:00.000-04:00What a tough, tough time you have been having! I ...What a tough, tough time you have been having! I take my hat off to you. I take enormous strain with them been mildly sick for a few days and look what you have had to deal with. You are a power woman, for sure.<BR/><BR/>Poor little Eden, it sucks being sick. Big smooch to all three of us. <BR/><BR/>TxxxTertiahttps://www.blogger.com/profile/17041136587660938690noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-1156538963971053452006-08-25T16:49:00.000-04:002006-08-25T16:49:00.000-04:00Oh my it sounds like it has not been boring at you...Oh my it sounds like it has not been boring at your house.... has it ever though? I am glad that youwere able to break down and get out your emotions. The girls are gorgeous and look very healthy in those great pictures! Keep on keepin on - that is all any of us can really do!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7915600.post-1156531557683145432006-08-25T14:45:00.000-04:002006-08-25T14:45:00.000-04:00Wow, I can't even begin to imagine how frightening...Wow, I can't even begin to imagine how frightening that passing out episode was. And what a wonderful nurse to keep her cool so as not to freak you out?! I think you're entitled to as many breakdowns and as much vodka as you decide you need after that. It's good to hear that despite your concerns the dr thinks the girls are doing great. That speaks volumes about you as a mom!Mhttps://www.blogger.com/profile/15681605230197477402noreply@blogger.comtag:blogger.com,1999:blog-7915600.post-1156517730275213812006-08-25T10:55:00.000-04:002006-08-25T10:55:00.000-04:00What a long few days! The pics are great as alway...What a long few days! The pics are great as always. I am so glad that you have a Ped. that you love!Allisonhttps://www.blogger.com/profile/07049469998249635875noreply@blogger.com