tag:blogger.com,1999:blog-79156002024-03-14T07:54:30.646-04:00Micro Preemie Twins: The Story of H & ETwin girls H & E were born prematurely at 24 weeks 3 days gestation in the summer of 2004. At birth H was 1 lb 3.5 oz, 11.5", E 1 lb 5.5 oz, 12". This is their story...Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.comBlogger595125tag:blogger.com,1999:blog-7915600.post-6000846689541217462015-09-14T09:32:00.005-04:002022-05-22T22:19:22.364-04:00V's First Day of 3-year-old Preschool<div class="separator" style="clear: both; text-align: center;">
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My wee babe is off to preschool. Where does the time go?</div>
Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com2tag:blogger.com,1999:blog-7915600.post-69647452469868247712015-09-08T11:22:00.000-04:002015-09-10T11:23:18.540-04:00First Day of FIFTH grade!<div class="separator" style="clear: both; text-align: left;">
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It's their last first day of elementary school. Sniff, sniff.</div>
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<br />Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com4tag:blogger.com,1999:blog-7915600.post-61673645052382655622015-06-19T11:16:00.001-04:002022-05-22T22:20:42.079-04:00New Wheels!<div class="separator" style="clear: both; text-align: center;">
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We didn't end up winning the bike contest, so in mid-April I started a GoFundMe campaign hoping to raise the money needed for E's bike. Just as I started spreading the word we were contacted by a very kind and generous anonymous friend who offered to purchase the bike for her. We are extremely grateful that we were able to make E's wish come true and we could never thank our friend enough.</div>
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E thought it only came in black, so when she saw a pretty PINK bike coming off the truck she was super excited.</div>
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Hooray for new wheels!</div>
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<br />Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com3tag:blogger.com,1999:blog-7915600.post-78928098562037652832015-02-20T11:59:00.001-05:002022-05-22T22:21:21.911-04:00E Needs a New Bike!!<div class="separator" style="clear: both; text-align: center;">
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E is a bike-riding super star and we were so lucky to have a bike donated to us from another family back when she was 5. She put a lot of miles on that bike, and had so much fun. Unfortunately (fortunately?) she has grown SO MUCH over the past couple of years and has physically outgrown that bike. She has also outgrown it in a mature, pre-adolescent manner as well, and is need of a bigger, cooler, faster, set of wheels. These adaptive bikes are obscenely expensive and well out of our price range. We have entered E into the "Great Bike Giveaway" and are really hoping to win a bike for her! Not only is it amazing exercise, it also allows her to participate with her sisters and friends hanging out, riding bikes in the neighborhood.<br />
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<a href="https://www.friendshipcircle.org/bikes/2015/02/eden-e/">Please click here and help E win a bike!</a><br />
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Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com6tag:blogger.com,1999:blog-7915600.post-40201951357082323232014-12-17T10:59:00.003-05:002014-12-17T11:00:28.786-05:00A Visit with the Big Man<div class="separator" style="clear: both; text-align: center;">
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<br />Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com5tag:blogger.com,1999:blog-7915600.post-53267426522355680772014-10-31T22:56:00.000-04:002014-12-17T11:00:20.198-05:00Furbies in Wonderland?<div class="separator" style="clear: both; text-align: center;">
Happy Halloween 2014!</div>
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Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com0tag:blogger.com,1999:blog-7915600.post-64539829983484828742014-09-02T11:03:00.000-04:002014-12-17T11:04:00.420-05:00First Day of 4th Grade!<div class="separator" style="clear: both; text-align: center;">
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<br />Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com1tag:blogger.com,1999:blog-7915600.post-2538876492468187812014-04-30T11:48:00.001-04:002022-05-22T22:24:07.769-04:00Marching for Babies...Again!<div>
<p>In just 4 short days our family once again be walking with Team H and E March for Babies to raise money for the March of Dimes!</p>
<p>It has been over 9 years since our twins arrived way too soon and much too small, yet every day I look at them and still see those babies fighting for their lives in the NICU. I never take their lives for granted, and I am grateful for every day that I get to watch them grow and thrive. They enrich my life, and the lives of everyone who knows and loves them, every day.</p>
<p>We have come so far in the past 9 years. H and E are in third grade, reading chapter books and learning their multiplication tables. E continues to love horseback riding and H has earned her orange senior belt in Choi Kwang Do. Both girls are enjoying another year of Girl Scouts and are realllllly looking forward to summer vacation!</p>
<p>Despite all of the progress they are making and all of the joy that they bring, the long-term effects of their prematurity will always be a part of our lives. E underwent surgery on a paralyzed vocal cord at the end of March and received her second cochlear implant last Monday. This makes a total of 12 surgeries between the two of them. E also completed 2 weeks of intensive PT at EuroPeds in February, and we are planning a 4 week session of conductive education this summer in Grand Rapids. It never gets any easier watching them go through so much.</p>
<p>I am thankful for advances in neonatal care that made our girls' lives possible 9 years ago. I hope that with continued research into causes and prevention of pre-term labor, as well as improved treatment options for those born too soon, fewer babies will face the long-term consequences of such an early birth.</p>
<p>With the help of our family, friends, and online supporters, Team H and E has already raised over $34,000 for the March of Dimes. We hope to continue our tradition of being one of the top family teams in our region and we are setting our sights high! Please visit our page to make a donation and to assist us in achieving our goal of helping to save babies!</p>
<p>Thank you so much for you support in our fund raising efforts over the years, and thank you in advance for supporting Team H and E as we walk this year!</p>
<p>Thank you all so much for your kindness and support,<br/>
B, J, H, E and V!</p>
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Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com4tag:blogger.com,1999:blog-7915600.post-43293207488476399742014-03-26T15:36:00.002-04:002022-05-22T22:53:44.941-04:00So Much to Say<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
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<tr><td class="tr-caption" style="text-align: center;">Daddy Daughter Dance 2014</td></tr>
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Tomorrow morning E will be having surgery to hopefully improve her voice and give her better volume. In January she was "officially" diagnosed with a paralyzed left vocal cord; a result of pda ligation surgery done when she was <a href="http://micropreemietwins.blogspot.com/2004/08/post-surgery.html">12 days old</a>. At the time of her pda ligation, we were told there was a 20% chance that her vocal cord could be paralyzed. We have since learned that with micropreemies (babies less than 2 pounds) this chance is actually much higher (perhaps <a href="http://www.preemieprimer.com/preemies-pda-ligation-and-vocal-cord-paralysis/">as high as 67%</a>). <br />
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E has always had a very quiet voice. As a baby, when she would scream until her face would turn red and tears would flow, but no sound would come out except for some squeaks and hisses. We have always suspected that her cord might be paralyzed, but we had so many other things on our plate that her quiet voice was not a top priority. <br />
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Now that E is older, the impact of not being able to speak up is becoming more apparent. At home or in quiet settings when we are in the same room we can hear her. It is tricky in situations where there is a lot of background noise, like in the car, restaurants, pool, as well as when she is across the house or in another room. Sometimes we really struggle to hear what she is saying and she has to repeat herself a LOT. It is also a struggle in social situations at school and in the classroom. E is very social and makes every effort to participate in conversation, but she often has a hard time hearing what everyone is saying (because of only one cochlear implant), and they cannot hear her when she responds. Kids are busy, and many times they do not take the time to listen closely or wait for her to repeat herself. This has become more isolating over the years and she tends to gravitate now to conversations with adults who will make more of an effort to hear her (and make sure she hears them).<br />
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We initially learned of the <a href="http://archotol.jamanetwork.com/article.aspx?articleID=1486525">reinnervation</a> surgery from our friend Abby in Philadelphia. Her daughter <a href="http://blogginghallie.blogspot.com/">Hallie</a> also had a paralyzed cord from pda ligation, and they were lucky to be near a voice clinic and one of the doctors who specializes in this field. Hallie had the surgery over a year ago and they shared their good success with us. Abby was kind enough to talk to Hallie's doctor and surgeon about E, and she referred us to someone local who could help us.<br />
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Dr. Brown at the University of Michigan hospital did a scope of E's larynx in January and confirmed the diagnosis. He was very optimistic about us pursuing the surgery for E and expressed that he feels that there is good hope for a positive outcome. Hallie's doctor in Philly, Dr. Karen Zur stressed that this surgery should be performed within 7 years of injury, and E is 9 1/2. This was not mentioned by our doctor in Michigan, but I feel glad to have the knowledge so I can have realistic expectations.<br />
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The reinnervation surgery will not "fix" E's vocal cord or make it move again, but over time it should help give it some additional bulk and tone, and prevent it from further atrophy so that E can get better vocal cord closure and more volume from her voice. The reinnervation will take 6 months to a year to get full benefit, so at the same time E is having a vocal cord bulking procedure done which should give her some immediate results. (Coincidently, another micropreemie friend <a href="http://lizmccarthy.blogspot.com/">K</a> is having the same reinnervation surgery the day after us in Utah. E and K had a fun Skype session this past weekend to hear each other's voices and chat about their upcoming surgeries (among other 8 and 9 year old topics of conversation:).<br />
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Once E has had a chance to recover from this surgery, we also have plans in the works for her second cochlear implant surgery on April 21st. I just got confirmation on the date today, and am very happy to have worked it out on the first day of spring break so E won't have to miss any more school! E's quiet voice is but one piece of the puzzle. She also has a very hard time hearing other people in situations where there is a lot of background noise, like at school. She has to concentrate so hard to filter out voices from background noise, and it really impacts how much she is able to catch from conversations going on around her. We have done a lot of research put a great deal of thought into this, before deciding that we need to pursue this option to help E hear optimally so she isn't missing so much.</div>
<br />
It is really, really stressful on J and I (and E of course) to go through all of this after so long without any surgeries or hospitalizations. We are feeling very apprehensive, rusty, and out of practice. I would love to keep my kids safe in our bubble and never worry about any of this again, but life moves on doesn't it? We are really, really hopeful that doing these surgeries will improve E's quality of life by making communication easier for her in the long run, particularly in light of the other challenges she faces. E is very social and wants her voice to be heard.<br />
<br />
She has so much to say.<br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhASMMLuWduBv4sKuSy8UqcZLejkwZLcWYzgPyGQ7Fs19P0ftBJvejteOl9E1qBP3wLXK8qI9A71f8JS-dSYTLcMQ0RTcnBhD6yUhip-JRRb5jXXtOxiAMzSc_v2sGKHiZZR_0B/s1600/IMG_9495.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhASMMLuWduBv4sKuSy8UqcZLejkwZLcWYzgPyGQ7Fs19P0ftBJvejteOl9E1qBP3wLXK8qI9A71f8JS-dSYTLcMQ0RTcnBhD6yUhip-JRRb5jXXtOxiAMzSc_v2sGKHiZZR_0B/s1600/IMG_9495.JPG" height="320" width="213" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Daddy Daughter Dance 2014</td></tr>
</tbody></table>
<br />
<div class="separator" style="clear: both; text-align: center;">
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<tr><td class="tr-caption" style="text-align: center;">Daddy Daughter Dance 2014</td></tr>
</tbody></table>
Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com12tag:blogger.com,1999:blog-7915600.post-89961148682344003432013-12-25T15:46:00.000-05:002014-01-10T15:47:19.744-05:00Merry Christmas!<div class="separator" style="clear: both; text-align: center;">
</div>
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<br />Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com4tag:blogger.com,1999:blog-7915600.post-44529094377225789002013-12-11T17:01:00.003-05:002022-05-22T22:59:55.446-04:00Catching Up<div class="MsoNormal">
While adjusting to Life with V, <st1:city>H</st1:city>
and <st1:city>E</st1:city> rocked second grade, and
the beginning of third. We were so lucky
to have a kind and amazing teacher for them last year, along with the continued
support of the rest of the team. They
learned so much, and were able to work through some of their challenges. They were also really lucky to be in a class
with a great group of about 10 girls who became good friends. It was pretty much smooth sailing over the
course of the year.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
This year has gotten off to a good start as well. We chose
to keep them together in the same class once again. They have two teachers who are splitting one
job, but both seem to be good solid teachers and the girls don’t seem to have
had any problems adjusting to the unique schedule. Our biggest disappointment at the beginning
of the year was that none of their girlfriends from last year are in their
class. I might have been more sad about
this than they were. They have made a
couple of new friends, but we have also had some “girl drama” that we had been
lucky to avoid up until this year. It
seems to be working out ok for now, and both girls are happy at school and seem
happy when they get home. We had
conferences last week and their teachers had a lot of positive things to say
about their personalities and behavior at school, which is wonderful to hear of
course. Both continue to struggle with math. It is coming along, but it
certainly doesn’t come easily. They are
both great readers and enjoy reading, but sometimes have a hard time talking
about, summarizing, or explaining what they have read. This makes it tricky to know exactly how much
they comprehend when they read independently.
I am certain this skill will come with time. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<st1:city>E</st1:city> loves to
write, and has many fabulous ideas and stories to tell. The physical act of writing continues to be a
barrier, and we are always working on ideas for helping her get her ideas onto
paper the most efficient way possible.
She has an ipad at school, and her aide often helps as a scribe, but a
lot of the time <st1:city>E</st1:city> just wants to
write it herself. She is allowed to do
this much of the time, but it slows her down and even though her handwriting
has greatly improved, there are still times it is hard to decipher what she has
written. <st1:city>E</st1:city>
has patience and determination in abundance, as well as a natural curiosity
about the world, and will work diligently to achieve her goals. Her current project is making rubberband
bracelets using a loom. This is all the
rage at school for girls her age right now, and when we saw it at the store she
HAD to have it. We bought it for her assuming
she would probably not be able to do it independently, but I enjoy that kind of
thing and would be more than happy to help her.
Well, she once again proved us wrong and worked at it for a day or two
before she was able to start making bracelets <i>all by herself</i>! She is very proud
and is working with dad to launch her very own website to sell some of her
creations.<br />
<br /></div>
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<br /></div>
<div class="MsoNormal">
<st1:city>H</st1:city> also has
good ideas and likes telling stories, but she really doesn’t like to do a lot
of writing. It continues to be a
struggle for her to get started and to stay focused long enough to complete
many tasks. She does not have a lot of
patience for tasks that require sustained mental effort, particularly writing
and math. She continues to have infinite
patience and enthusiasm for video games and pretend play. Her passion for Pokemon has dwindled somewhat
over the past couple of months, to be replaced for the moment by Harry Potter (we
just finished book three) and Animal Jam.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Both girls are doing Brownies again this year, and finished
up two seasons of Miracle League Baseball at the beginning of October. <st1:city>H</st1:city>
started Choi Kwang Do lessons twice a week last February and recently tested
for and earned her gold senior belt. She
is doing an awesome job with that! E
continues to ride horses 1-2 times per week at two different barns, one for
hippotherapy and one therapeutic riding, though they are currently on hiatus for the winter.
<st1:city>H</st1:city> went to a week long drum
camp over the summer, and has taken a few drum lessons. <st1:city>E</st1:city>
has had one piano lesson with her aunt (J’s sister) and is interested in
continuing as we have time and can coordinate schedules. <st1:city>E</st1:city>
went to a sign language camp over the summer and really enjoyed that as
well. She would love to take lessons or
a class to learn more but I just don’t think I can cram one more activity into
our lives at this point. Not and still
maintain my sanity!<br />
<br /></div>
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<br /></div>
<div class="MsoNormal">
There are still so many holes in the blog due to the super
busy nature of our lives. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I never talked about the horrible illness E had last
March that caused her so much pain and loss of function, and brought our lives
to a major standstill.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I never talked about us looking into the possibility of a
second cochlear implant for <st1:city>E</st1:city>,
starting the process and the necessary testing. We are still on that path with
another appointment coming up soon.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I never talked about ordering and receiving <st1:city>E</st1:city>’s
new pink power wheelchair, a Permobil M300, and its pros and cons. That was
quite a process (and still a headache).</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I never talked about going to the Abilities Expo in <st1:city>Chicago</st1:city>
in June, and all the cool things we saw and the nice people we met.<br />
<div class="separator" style="clear: both; text-align: center;">
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<br /></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I never talked about our super-fun summer vacation to <st1:state>Michigan</st1:state>’s
<st1:place>Upper Peninsula</st1:place>, <st1:place><st1:placename>Mackinaw</st1:placename>
<st1:placetype>Island</st1:placetype></st1:place> and <st1:place><st1:placename>Tahquamenon</st1:placename>
<st1:placetype>Falls</st1:placetype></st1:place>. It was our first vacation as a family of
five!</div>
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<br /></div>
<div class="MsoNormal">
I never talked about <st1:city>H</st1:city>
finally hitting a growth spurt and surpassing the 40-pound mark! I also didn’t talk about her newfound love of
mac-and-cheese for breakfast…everyday.
Who knew?</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I didn’t talk about J and I celebrating our 15<sup>th</sup>
wedding anniversary and our 20 year anniversary of being together as a couple.</div>
<div class="MsoNormal">
<br /></div>
<br />
<div class="MsoNormal">
What a journey it has been!<o:p></o:p></div>
Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com4tag:blogger.com,1999:blog-7915600.post-91550100946230896162013-12-01T16:58:00.002-05:002022-05-22T23:02:25.737-04:00Life with Vi<div class="MsoNormal">
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<br /></div>
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<br />
Somewhere around the 5-month mark V turned into a
super-delightful, good natured, sweet and silly baby. She is very affectionate and loves to give
hugs and kisses to her family. She pats
us on the back and says “Awwwwww.” She
is a little mimic, with her head-tip, vocal intonations, and hand gestures,
acting like she is having grown-up conversations with her jibber-jabber
voice. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
She has been a slow-starter with eating; not expressing a
lot of interest at the 6-month mark when we started introducing some
foods. She didn’t want a whole lot to do
with food until closer to 9 or 10 months, and preferred to self-feed over baby
food. Even now, it is somewhat hit or
miss. Some days she feels like eating a
lot, and other days she throws everything on the floor and wants nothing to do
with it! She is a fruit-head, and will
almost always chow down happily on blueberries, strawberries, watermelon, and
grapes.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
She still loves to nurse with Mama. She tugs at my shirt, says, “dis,” and signs
milk when she wants to eat. She is an
active girl, often trying to stand, bounce, and do headstands while she is
nursing. She never had a problem going
between bottle and breast, but if Mama’s around that’s what she wants. She sleeps in our room in her porta-crib, and
still wakes at least once a night to nurse, though most night it can still be 2
or 3 times…or a million. I would love to
sleep through the night again some day.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Here’s some shocking news for you…<i>she is small for her age</i>!
She was holding her own, near the bottom of the weight growth chart
until 6 months, then at her 9 month appointment she fell right off to the 0
percentile. Recently, at her 15 month
appointment she was still at 0 for weight, but near the 20<sup>th</sup> for
height, and near the 70<sup>th</sup> for head.
Big brains, little body. It runs
in the family. She currently weighs about 17.5 pounds give or take (isn’t that
a hoot…I don’t even really know exactly).<br />
<br /></div>
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</div>
<div class="MsoNormal">
<br />
She has also been a slow starter with gross-motor
skills. At her 9-month physical the
doctor expressed some concern that she wasn’t crawling yet, and suggested that
I contacted early intervention to have her evaluated. I didn’t, but I did have 2 of <st1:city>E</st1:city>’s
PTs look at her informally. They both
agreed that she looked fine, everything was coming along “within normal
limits”, and they gave me a few suggestions for things we could do to help her
along. She started crawling around 10
months and walked just before 15 months.
That would be 9 and 14 months if you account for her prematurity, but
whatever, right?</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
What she lacks in the gross motor area, she makes up for in
cognitive development and language. At
her 12-month appt we counted about 20 words that she was able to say. By her
15-month appt we lost track. She talks
so much and gains new words and concepts every day. She knows most of her animal sounds
(including “What does the fox say? ding, ding, ding, da-ding da-ding ding”),
many body parts, hand motions to songs, and names of family members. She is learning tons of signs now, and
recently learned to sign “nurse, please,” making it impossible for me to tell
her no. She tells herself, “no, no”
right before she does something naughty.
She says “caca” before eating gross stuff off the carpet. She loves to empty all of our cupboards and
cabinets, and the only time we have we have peace and quiet is when she is
happily emptying one of her “stations.”
She is SO LOUD! Her voice demands
to be heard. She screeches so loudly
that we are (jokingly) afraid our ears will bleed. <st1:city>H</st1:city>
and <st1:city>E</st1:city> still sleep with a monitor
in their bedroom because we cannot hear them when they call for us, even though
they are right across the hall. We can
hear V clear across the house, no monitor needed!</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
She is gorgeous. We
see a little bit of each of us in her, but she has a look all her own. She has big, bright eyes that strangers
always comment on. They used to be gray,
but are turning brown. She has shaggy,
stick-straight hair, with beautiful blonde highlights that hangs right in her
eyes. The moment she realizes there is a
barrette or ponytail in her hair she yanks it right out. She has 10 teeth (6 on top and 4 on bottom),
and it seems a couple more are on their way soon. 4 of her teeth were in at 6 months, and she
has the most adorable toothy grin.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
She is silly, silly, silly, and makes us all laugh every day
with her antics. She is strong-willed
and demanding, and annoys us every day with her antics as well (especially the
food-throwing). She is most of all,
extremely lovable. She adores her
sisters and they adore her…mostly…when she isn’t grabbing their glasses,
pushing all the keys on their computer, or screaming loudly at the dinner
table. <st1:city>E</st1:city>
enjoys carrying her on her lap in the baby bjorn when driving her
powerchair. <st1:city>H</st1:city>
enjoyed walking her around holding her hands when she was first learning, and
now enjoys playing “chase” with her.
They both love watching her learn new things, and giggle at her
silliness.<br />
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<br />
There have been moments of jealousy and frustration because
she does demand a great deal of attention. H and E were used to being
at the center of our universe for 8 years, so it has been an adjustment for all
of us, but all in all, our lives have been enriched by having this little ball
of energy and light join our crazy family. </div>
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We wouldn’t want it any other way.</div>
Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com0tag:blogger.com,1999:blog-7915600.post-66265259862849809132013-11-24T22:48:00.002-05:002022-05-22T23:05:56.016-04:00The Aftermath: A Reflection<div class="MsoNormal">
My baby girl is now a toddler. Sigh.</div>
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<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dy2X3rSTzxuj8E5iRL8VZYQHuMSi8NkemkSSMz0nSqKfYerf4bWRtQ-q7ZK8FyLJTGa7QwBEZnwF7A' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>
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V started walking the week of Halloween, shortly before
she turned 15 months old. Now, three
weeks later she has gained a lot of confidence and is trying to run! I am glad that she was slightly on the older
side for reaching this milestone, because it gave me a little more time to
absorb her babyness. The rate at which
time passes has me feeling so wistful these days. I have moments of anxiety with this feeling
like we are hurtling so quickly toward middle school, high school, college, old
age, and beyond. I try to make an effort
often to slow down, take a breath, and allow myself to be fully present in the
beauty of the moment. It puts a lump in
my throat just to sit and type this.</div>
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<br /></div>
<div class="MsoNormal">
This blog certainly served it original purpose in providing
a forum for me to keep our families and friends apprised of <st1:city>H</st1:city>
and <st1:city>E</st1:city>’s progress in the NICU and
beyond; but it turned out to be so much more.
It allowed me to keep a beautiful log of our milestones. I find myself frequently looking back to
remember certain details when the girls ask questions, or when I am trying to
provide support or information to someone else who finds themselves in our
shoes. It is really so priceless to me
now, because of how quickly our memories fade. As much as I try to soak them
up, nurture them, and keep them with me; they are fleeting, and it helps to
have them captured here. This blog has
also helped me to create a wonderfully supportive network of friends and
acquaintances in the computer who have helped us on our journey.</div>
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<br /></div>
<div class="MsoNormal">
I have not kept up with the blog, and the reason is a good
one. My hands and my heart have been too
full! Between caring for V,
nursing, pumping, working, cleaning, sorting, organizing, vacationing, shuttling,
shopping, preparing, advocating, and generally managing our household, I just
haven’t made it a priority to sit down, clear my head, and take the time to do
this. But I really do want to have some
record of V’s life and milestones, so that someday she can look back and
know that she was celebrated too! </div>
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So where do I start?</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I talked about the joys and stresses of my pregnancy with V, but I
never really elaborated on the aftermath and what it was like in those first
days and months after V was born.<br />
<br />
We had a rough start, to put it lightly.<br />
<br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgn2zqZXlI01MAHDJfS8WMqy_Uu-UWKAu7HWFJIExi9wv1n-B__1Idc7uuTsQNHbiIuPIHEWicAJGzIOpO65lCuA3LgfGiMHWgZ18jbyZlzuEku-xOKEhY2TbBGVE1fHV0mbtOZ/s1600/IMG_1265.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em; text-align: center;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgn2zqZXlI01MAHDJfS8WMqy_Uu-UWKAu7HWFJIExi9wv1n-B__1Idc7uuTsQNHbiIuPIHEWicAJGzIOpO65lCuA3LgfGiMHWgZ18jbyZlzuEku-xOKEhY2TbBGVE1fHV0mbtOZ/s200/IMG_1265.JPG" height="200" width="150" /></a>
I had a horrible, horrible allergic reaction following my c-section that
lasted for 2 weeks and nearly caused me to lose my mind. It started
the day after V's birth, at the sight of my incision where steri-strips had been used to
tape me up. In hindsight, I remember a
minor reaction to this tape, as well as tape used on the girls’ faces in the
NICU causing a rash on my chest when I would hold them. That was a long time ago and nothing that would have prepared me for
this. Pardon the graphics, but I feel
the need to stress how awful this was.
Everywhere the tape touched me turned into severe burn-like blisters
that oozed, crusted over, and scabbed.
Within 2-3 days a bright red, rough, blistery rash started spreading
over my entire torso, into my armpits, behind my ears, down both thighs, and
into my nether regions. This rash itched
like you cannot imagine itching. It was
relentless. Words cannot describe how
miserable I was.</div>
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At the same time I was dealing with this, I was trying to
learn to breastfeed V and it wasn’t happening easily. She was quickly losing weight (got down to 5
lbs ½ oz) because she was resistant to latching on, and when she would latch on
she was not sucking productively and was not getting any milk. She would suck and suck and suck, but never
swallow, then would fall asleep. As soon
as I would take her off the breast, she would start crying again. She seemed so hungry, but wasn’t able to get
my milk from the breast. I was
heartbroken because I wanted this so badly, and I didn’t want it to be
hard. I also did not want to pump. I pumped for <st1:city>H</st1:city>
and <st1:city>E</st1:city> for 9 months and had a lot
of negative emotion attached to the pump.
I started pumping in the hospital with V and it brought back a huge
flood of that emotion. Then, once home
when I had to start supplementing V’s feedings to get her weight back up,
those emotions really welled to the surface.
We began the endless cycle of trying to nurse, pump, give her a bottle,
wash all of the parts, then repeat, while my poor nipples became so sore and
cracked, and breastfeeding so painful.
We also began the seemingly endless doctor’s appointments for weight checks, and
trying to figure out what was happening with my rash.</div>
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<br />
I did one course of oral steroids trying to get rid of the
rash, but the low dose didn’t even touch it.
I tried countless topical treatments, nothing helped. I was very hesitant to taking a higher dose
of steroids and/or any antihistamines because I was trying so hard to establish
my milk supply and breastfeed that I didn’t want to do anything that might
jeopardize that. About 12 days in, I
went to a dermatologist and got a prescription for the higher dose of steroids,
but decided to contact the pediatrician to double check the safety. By the time
she called me back the next day I felt like I was finally less itchy and the rash
had stopped spreading. The day after that there was even more improvement. Eventually it all cleared up except for a
small rash along one side of my scar that still continues to bother me to this
day. I plan to look into it further once
I am completely done breastfeeding.</div>
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<br /></div>
V did eventually learn to
breastfeed. It took a good 4 weeks
before I was able to stop pumping and supplementing with a bottle, but once she
got the hang of it she never looked back.
In fact, she wanted to do it constantly.
When she wasn’t nursing she was crying.
I lost count of the number of times I googled “my baby wants to nurse
constantly.” I bought a ring sling, and
that saved my life in those first few months.
She would sleep on my chest in the sling. My nipples could have a break and I could get
a few things done around the house…win-win.
I was lucky, lucky to be able to stay home with her for the first 5
months, and lucky for everyone involved (namely Nana), she outgrew the “Cryolet” phase right
around the time I went back to work part-time. Whew. We survived.<br />
<span style="font-size: 12pt;"><br /></span>
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<br />
At the time I worked really hard to hold it all together; but admittedly, those first few weeks ended up being very, very different than I had imagined. I could have managed the rash alone. I could have managed the difficult start to breastfeeding. I could easily have managed the lack of sleep. It was the combination of all of those things that had me close to the edge.<br />
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Looking back now I realize…I DID manage it! And I have managed MUCH worse. Sure, we had times when J and I were alone at night with the baby and I just sobbed my heart out because I was SO ITCHY and the baby WOULDN’T EAT and things were SO HARD. But, I had a healthy baby and we were going through all of this at HOME with our family together. So really, was it all that bad??
Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com3tag:blogger.com,1999:blog-7915600.post-6965106290731953172013-10-31T23:00:00.000-04:002013-11-25T15:04:03.274-05:00Happy Halloween!From our family of Witches, Wizards...and a Little Ladybug!<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjABUVAsqyfrsihx3jshyphenhyphenMi77kOW7XX5s90L34y7NG5Hm173y0PgqW8gCEolMAvTSr3uzw9682IIwV_-32wqubPDbKzWUn38Th5N_SUSmNfudDLvfC24ibZ7njzKkSJzfqY7lgC/s1600/IMG_9003.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjABUVAsqyfrsihx3jshyphenhyphenMi77kOW7XX5s90L34y7NG5Hm173y0PgqW8gCEolMAvTSr3uzw9682IIwV_-32wqubPDbKzWUn38Th5N_SUSmNfudDLvfC24ibZ7njzKkSJzfqY7lgC/s320/IMG_9003.JPG" width="213" /></a></div>
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Hermione and Cho</div>
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Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com0tag:blogger.com,1999:blog-7915600.post-77977789683519604922013-10-14T16:02:00.000-04:002013-10-30T15:02:58.054-04:00Our Littlest Pumpkin<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHB9L3WQVbdEfvORlSFt4QGGuMxS_ziXf6yXVw7bObCfInYfAJ-UWUpMxPkiI2wPLTIMDssXUPWDCvQWzIZP3AQc-hULfiZgtOqGcB5S36WEV2hwYw-s3tbu57NNuroQvv8Byt/s1600/photo+(3).JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHB9L3WQVbdEfvORlSFt4QGGuMxS_ziXf6yXVw7bObCfInYfAJ-UWUpMxPkiI2wPLTIMDssXUPWDCvQWzIZP3AQc-hULfiZgtOqGcB5S36WEV2hwYw-s3tbu57NNuroQvv8Byt/s400/photo+(3).JPG" width="400" /></a></div>
<br />Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com5tag:blogger.com,1999:blog-7915600.post-79525354385081206272013-09-03T14:26:00.000-04:002013-10-09T14:27:20.799-04:00First Day of Third Grade<div class="separator" style="clear: both; text-align: left;">
Another adventure begins!</div>
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<br />Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com2tag:blogger.com,1999:blog-7915600.post-43109351471834577802013-08-03T18:46:00.000-04:002013-08-04T18:47:01.293-04:00Time Flies......when you are having fun!<br />
<br />
I can't believe it has been a year already! Our sweet little bonus baby brings such joy to our house. I am trying to soak her up, cherishing every moment because it passes much too fast.<br />
<br />
Happy 1st birthday Vi Vi Pumpkin Pie. I love you more than words.<br />
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Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com7tag:blogger.com,1999:blog-7915600.post-5820481262653761362013-07-31T18:40:00.000-04:002013-08-04T18:40:52.631-04:00I blinked my eyes......and they turned 9 year old.<br />
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Happy Birthday to my dear, sweet, beautiful, silly, and amazing daughters. <br />
<br />
I feel so lucky that I got to keep you.<br />
<br />
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<br />Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com1tag:blogger.com,1999:blog-7915600.post-74096395802463309112013-06-13T18:52:00.000-04:002013-08-04T18:53:11.372-04:00Last Day of 2nd GradeThese girls are ready for summer vacation!<br />
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Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com0tag:blogger.com,1999:blog-7915600.post-7013728541589526182013-05-18T23:15:00.003-04:002013-05-18T23:15:54.396-04:00Lovely Ladies<div class="separator" style="clear: both; text-align: center;">
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Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com8tag:blogger.com,1999:blog-7915600.post-4445521574417908312013-04-24T17:53:00.002-04:002013-04-25T11:45:14.039-04:00Just 3 More Days til we March for Babies!!<br />
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I know that I am long overdue for an update on Life with Vi, and I promise it is coming soon...<br />
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In the meantime, please consider supporting <a href="http://www.marchforbabies.org/hollandeden">Team Holland and Eden</a> as we once again March for Babies...this year with a new team member in tow!<br />
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<br />Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com1tag:blogger.com,1999:blog-7915600.post-87423423807294972172013-03-08T20:22:00.000-05:002013-03-08T20:24:38.497-05:00Daddy Daughter Dance<center><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCK7E-Wp816bM_rQWRkExTfVCNn7ZA2JC6PmsoB7pshv0wdVk-e_tI8xiwapcsslXhkrubncb62IyoZ6d6mld-6fPHhyphenhyphenK3tWqBvzCVo2VW5RJp4rJbDxyON_oXKFSc-8iFkG5a/s1600/2013.03.08DaddyDaughterDance1.jpg" imageanchor="1"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCK7E-Wp816bM_rQWRkExTfVCNn7ZA2JC6PmsoB7pshv0wdVk-e_tI8xiwapcsslXhkrubncb62IyoZ6d6mld-6fPHhyphenhyphenK3tWqBvzCVo2VW5RJp4rJbDxyON_oXKFSc-8iFkG5a/s320/2013.03.08DaddyDaughterDance1.jpg" /></a></center>
<center><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNy8f9cKQRlb5NibK60ibp5xaTAngUG8ImBHICG-ewb0sQOgYXc8aSYqLSTnFZINBxvmQknzrZhQxz21jm538nQ4caFDWIRLQ6qOuFIjx8o19utWA-XDPUtxk1Cez0aWdFJeli/s1600/2013.03.08DaddyDaughterDance2.jpg" imageanchor="1"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNy8f9cKQRlb5NibK60ibp5xaTAngUG8ImBHICG-ewb0sQOgYXc8aSYqLSTnFZINBxvmQknzrZhQxz21jm538nQ4caFDWIRLQ6qOuFIjx8o19utWA-XDPUtxk1Cez0aWdFJeli/s320/2013.03.08DaddyDaughterDance2.jpg" /></a><br />
<br /></center>Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com5tag:blogger.com,1999:blog-7915600.post-85943990345624297982013-01-01T17:36:00.000-05:002013-01-20T17:37:50.777-05:00...and a Happy New Year!<div class="separator" style="clear: both; text-align: center;">
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Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com7tag:blogger.com,1999:blog-7915600.post-67751592872908886122012-12-25T17:31:00.000-05:002013-01-20T17:36:27.835-05:00We Wish You a Merry Christmas...<div class="separator" style="clear: both; text-align: center;">
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Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com0tag:blogger.com,1999:blog-7915600.post-65698728457391875602012-11-12T17:39:00.000-05:002012-12-28T17:40:26.198-05:00Brownies!<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjp3iQXkeLl99mvhXGOXsPrHUYqDctpmYea4TT6xMNphW7PRHBTk8zK8TC2XXcknLIEr_14VcxVS6f0teCk6GJaRmuj-L-XDMENi0euAHJuS0tTh0Ir6QJcywaNOeGqaYanEM1p/s1600/2012.10.22FirstBrownieMeeting.jpg" imageanchor="1" style="margin-left:1em; margin-right:1em"><img border="0" height="320" width="214" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjp3iQXkeLl99mvhXGOXsPrHUYqDctpmYea4TT6xMNphW7PRHBTk8zK8TC2XXcknLIEr_14VcxVS6f0teCk6GJaRmuj-L-XDMENi0euAHJuS0tTh0Ir6QJcywaNOeGqaYanEM1p/s320/2012.10.22FirstBrownieMeeting.jpg" /></a></div>
Billiehttp://www.blogger.com/profile/10589229199716201638noreply@blogger.com4