In the beginning our blog was all about having micro preemie twins, the many issues that we faced in the NICU and since, related to extreme prematurity. Over the past two and a half years it has evolved, and has become more and more about raising children with special needs.
I've gone from constant googling of "micro preemie stories" to looking for children with profound hearing loss, cochlear implants, cerebral palsy, and other moderate to severe disabilities. In looking for others with similar circumstances I found Fiona, who is close in age to my girls and has a cochlear implant. More recently I have found Jack and Moo, adorable little boys diagnosed with CP, who are a bit older than Eden and slightly further along on the CP journey than us. I have also found Dream Mom and Mete, who I have found to be wonderfully kind, supportive, and insightful in their blogging about life as the parent of a child with severe disabilities. I gain my inspiration to be the best mom I can be from these women, and from other parents who have paved the road before me.
I'd like to use this post as a resource for parents out there looking for information and support in raising a child with a disability. If you are a parent raising a special needs child, please comment. Tell me your story, including your child's name, age, and type of disability, so that parents looking can find others dealing with similar issues.
I am also interested in hearing from adults living with disabilities, particularly those with cochlear implants, CP, or who use a wheelchair to get around. I am sure your stories will provide hope and guidance for me, in my quest to be a strong advocate for my daughters, as well as for them in having role models to look up to as they strive to find their places in the world.