Sunday, April 08, 2007

Cerebral Palsy Moms Group

To say that Holland and Eden like bubbles would be a HUGE understatement.

You know, I joined a "Micropreemie Blog Moms" Group a while back, and have found it to be really interesting, useful, helpful, and supportive forum. I feel like I have gotten to know some of the group members pretty well, and have found them to be quite wonderful in responding to me when I need someone to vent my frustrations to, as well as to ask questions related to having preemies.

Occasionally, someone will post a question related to having a child with a disability, such as what are the signs/symptoms of CP, what is a good pediatric stander, etc. Sometimes there are questions I feel qualified to respond to, and sometimes not.

Recently through this blog, I have "met" a few other moms of children with CP, and have gotten to like them quite well! Collectively I think we have a lot of questions, as well as a lot of answers and ideas that we can share with one another.

So, I think I would like to start a "Cerebral Palsy Moms" Group where we can keep in touch and connect with one another on another level. I think this could be a valuable resource for us to share ideas and experiences, and to learn from and help one another. It would also be a great way for newer moms of children with CP to find some support. What do you think? Jacqui? Kathryn? Heather? Angela? Anyone else? Would those of you parenting children with CP be interested in joining such a group?

I have gone through the first few steps of setting this up. I apologize that I don't really know what I am doing, but I think I can learn. If you have a child with CP, and are interested in joining, click here. Let me know if it works, or if you have problems, and I'll try to figure it out. Or I'll ask John to figure it out for me:)


This is the bubble QUEEN!

10 comments:

Jenny said...

Hey..

IOhavea VERY lcose firend who is 15 with CP. i know a LOT bout CP, so is it okay if i join?

Kristin said...

I absolutely love the expression on Eden's face.. and it brought a big smile to my face to see her on her pony walker.. she has really blossomed with it. And Holland looks so studious and grown up with her glasses!

Anonymous said...

We just found bubbles and my son loves them!!

Angela said...

I LOVE the idea of a CP group!

Kathryn said...

Billie - I am sooo IN! I love the idea of a CP Moms group. I have felt a bit out of it in terms of the preemies group because Ellie wasn't a "micro". Not that that matters much now, the point being, I would love a forum that would be about where we are NOW dealing with CP! Thanks for starting this. I will click in and join tonight.

Great idea - yay for all of us!
Kathryn

Jacqui said...

I'm in too!

Thanks Billie.

Belle said...

I love this picture of Eden with the bubbles and with the little basket on her pony walker. It made me laugh out loud (lol).

Sherry

Mel said...

I would love a CP group too!

Anonymous said...

I belong to a preemie yahoo group. A lot of mom's on there deal with children with CP, I am sure many of them would be interested in a CP moms' group. Here is the group

preemie-list@ yahoogroups. com

I am sure if you make them aware of this you would get a great response.

Good luck

Anonymous said...

I just came across your blog today. I have former 27 week triples and two of them have CP. I started a Yahoo group 3(?) years ago called OurCPKids - we now have over 600 members. Feel free to check us out.